• Factors Influencing Motivation and Engagement in Mobile Health Among Patients With Sickle Cell Disease in Low-Prevalence, High-Income Countries: Qualitative Exploration of Patient Requirements 

      Issom, David-Zacharie; Henriksen, André; Woldaregay, Ashenafi Zebene; Rochat, Jessica; Lovis, Christian; Hartvigsen, Gunnar (Journal article; Tidsskriftartikkel; Peer reviewed, 2020-03-24)
      <i>Background</i>: Sickle cell disease (SCD) is a hematological genetic disease affecting over 25 million people worldwide. The main clinical manifestations of SCD, hemolytic anemia and vaso-occlusion, lead to chronic pain and organ damages. With recent advances in childhood care, high-income countries have seen SCD drift from a disease of early childhood mortality to a neglected chronic disease of ...
    • Preliminary Evaluation of a mHealth Coaching Conversational Artificial Intelligence for the Self-Care Management of People with Sickle-Cell Disease 

      Issom, David-Zacharie; Rochat, Jessica; Hartvigsen, Gunnar; Lovis, Christian (Journal article; Tidsskriftartikkel; Peer reviewed, 2020)
      Adherence to the complex set of recommended self-care practices among people with Sickle-Cell Disease (SCD) positively impacts health outcomes. However, few patients possess the required skills (i.e. disease-specific knowledge, adequate levels of self-efficacy). Consequently, adherence rates remain low and only 1% of patients are empowered enough to master the self-care practices. Health coaching ...
    • Toward a Conversational Agent to Support the Self-Management of Adults and Young Adults With Sickle Cell Disease: Usability and Usefulness Study 

      Issom, David-Zacharie; Hardy-Dessources, Marie-Dominique; Romana, Marc; Hartvigsen, Gunnar; Lovis, Christian (Journal article; Tidsskriftartikkel; Peer reviewed, 2021-01-29)
      Sickle cell disease (SCD) is the most common genetic blood disorder in the world and affects millions of people. With aging, patients encounter an increasing number of comorbidities that can be acute, chronic, and potentially lethal (e.g., pain, multiple organ damages, lung disease). Comprehensive and preventive care for adults with SCD faces disparities (e.g., shortage of well-trained providers). ...
    • User Expectations and Willingness to Share Self-Collected Health Data 

      Woldaregay, Ashenafi Zebene; Henriksen, André; Issom, David-Zacharie; Pfuhl, Gerit; Sato, Keiichi; Richard, Aude; Lovis, Christian; Årsand, Eirik; Rochat, Jessica; Hartvigsen, Gunnar (Journal article; Tidsskriftartikkel; Peer reviewed, 2020)
      The rapid improvement in mobile health technologies revolutionized what and how people can self-record and manage data. This massive amount of information accumulated by these technologies has potentially many applications beyond personal need, i.e. for public health. A challenge with collecting this data is to motivate people to share this data for the benefit of all. The purpose of this study is ...
    • User Expectations and Willingness to Share Self-collected Health Data 

      Woldaregay, Ashenafi Zebene; Henriksen, André; Issom, David-Zacharie; Pfuhl, Gerit; Sato, Keiichi; Richard, Aude; Lovis, Christian; Årsand, Eirik; Rochat, Jessica; Hartvigsen, Gunnar (Journal article; Tidsskriftartikkel; Peer reviewed, 2020)
      The rapid improvement in mobile health technologies revolutionized what and how people can self-record and manage data. This massive amount of information accumulated by these technologies has potentially many applications beyond personal need, i.e. for public health. A challenge with collecting this data is to motivate people to share this data for the benefit of all. The purpose of this study is ...